Saturday, October 22, 2011

From the Beginning


I wanted to start this blog to help people understand where our journey with PANDAS/PITANDS/PANS started.  Our hope is that through this blog we can share our story, our experiences, our hopes, frustrations, humility, hope, and prayers with those that are either unfamiliar with this clever and difficult infection and for those that are walking the walk with their child today.  Many of our friends from facebook have created numerous private groups to share their story and collaborate on effective treatments, physicians that are willing to treat our children, homeopathic remedies, and therapies that help our children navigate through what, at times, feels like an impossible journey of healing.
 
What used to be considered a rare disorder, affecting merely a handufl of children across our nation, is now more recognized by not only the medical industry but is being communicated across the globe by parents like you and me pushing the healthcare industry to dig deeper than pills, read beyond the J.A.M.A. publications, and sink their efforts into finding the underlying bacterias that are impating so many children today.  Who knows, perhaps we have become the victims of our own protective practices of vaccination, antibiotics, vitamins, etc... and now the invisible world of invasive bacterias have "learned" how to adapt to our futile efforts of protection only to make themselves more powerful in their ever present attempts to find a host.
 
I pray that each of you that follows our journey will benefit in some small way from knowing that you're not alone.  We are dealing with this day by day with a hope that our Lord and Savior, Jesus Christ, will help us to find a cure for our child's ailment, and that He will be by our side, as he always has, to the end.  For we know our hope is not in man or his efforts, but rather that our life on this Earth is merely the beginning of an eternal life with Him and that all things work for good for those who know the Lord.  God bless you all, and please feel free to comment and give us feedback about your journey as well.
 
In His name I pray,
Mark

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